A Baby from Florida who received only weeks to live today is thriving, and would not have been possible without the generosity of an anonymous donor who covered her medical bills.
When Bill and Meg Longhenry welcomed their second child, Millie, in August 2023, they were told that they had no hope of survival due to a weird and severe congenital brain disorder called Holoprosencephaly of Alobar (HPE).
HPE affects approximately one in 10,000 living births, and most babies do not survive beyond the first week, according to statistics. Millie was born with the most serious form of the disease.
The boy honest by Trump says that cancer will not delay it until ‘God calls’ home
“We discovered that she has a rare brain malformation in which part of her brain did not develop, and the other part did not develop correctly,” said Meg Longhenry in an interview in the camera with Fox News Digital.
“So there is no division between the two hemispheres and the medium is hollow.”
Millie longhenry (left) was diagnosed with severe congenital brain malformation called Holoprosencephaly Alobar (HPE) at 2 months of age. (Nadine B. Photography)
Doctors told parents that “Millie should have been a spontaneous abortion or a fetal dead,” said his mother. “I should have died moments after birth.”
“They told us that more than 95% of patients with this diagnosis do not survive beyond the first months … and anyone who survives the past that requires a huge supply of medical care, such as feeding tubes and breathing tubes,” said Bill Largehenry. “Usually, they have no brain function.”
Children with Down syndrome can live ‘abundant lives’, Dad tells the taxpayer
After spending two months at the hospital, Millie was sent home in hospice care with four to six months to live, but the lengths were not ready to surrender.
“God had something else in mind,” said Bill longhenry. “God had a different plan, and only God could make that decision.”
“Millie should have been a spontaneous abortion or a fetal death,” doctors told the baby’s parents.
A friend recommended that Millie’s parents connect with Dr. Brandon Crawford, a functional neurologist in the Austin Neuroscion center, which specializes in the use of non -invasive techniques without drugs or surgery.
When MRI reviewing and examining Millie, Crawford said he saw “great potential.”
Millie, in the photo with her older brother, Theo, was born with the most severe form of Alobar Holoprosencencephalia. (Nadine B. Photography)
While much of his brain is missing, he said, the highest portion is “relatively intact and works well,” he told Fox News Digital.
“I started having the idea that this child is really trying: he is not in decline, he is really fighting to live his life in this world.”
Challenging the chances
Under the care of Crawford, Millie began a treatment plan that included laser light therapies, acoustic wave therapy that uses sound waves to stimulate natural healing processes and primitive reflex integration, which “refer” to the connection of the brain body and helps babies to learn to better control their movements.
Dr. Marcella Madera, a neurosurgeon who serves as a medical director of Neurosolution, also collaborates in the treatment of Millie to guarantee security and effectiveness.
The new brain therapy allows paralyzed patients to walk again
“It is this combination of regenerative medicine, functional neurology of development and photobiomodulation that is causing and feeding its brain development and its creation of neuroplasticity,” Crawford told Fox News Digital in a separate interview.
“For example, she can see clearly and responds to visual signals, but does not have most of those visual routes developed in her brain,” he continued. “That means that his brain has wired and reallocated the ability to see, and that is the surprising part, that the brain can do it.”
In Austin Neurosolut Center, Millie began a treatment plan that included laser light therapies, acoustic wave therapy that uses sound waves to stimulate natural healing processes and primitive reflex integration. (Bill and meg longhenry)
Bill longhenry describes treatment as “combining physiotherapy with neuronal functions.”
Today, Crawford said, Millie is not only surviving, but thriving, something very rare for this condition.
“She continues to grow and develop and is becoming stronger,” he said. “We are working to drag with her right now, that is unheard of for this. His joint attention continues to improve, even his ability to eat.”
The father created a drug to save his son from a rare disease, now other families are desperate to get it
Millie is also starting to vocalize, said Crawford, saying “Mom” and “Dad” and communicating with his older brother, Theo.
“She has a small brave personality, and it’s incredible,” he said. “Honestly, if you look at her and interact with her in person and then look at her magnetic resonance, you would not think she is the same child.”
Millie is smiling, laughing and responding to her name. He also understands people’s speech and uses sign language, his family said. (Nadine B. Photography)
Millie is smiling, laughing and responding to her name. She also understands people’s speech and is using sign language.
“Millie would not be here today if we were not doing the different things to help her brain, to help her again,” Meg Longhenry added.
Prayers answered
Last month, Millie’s family faced the possibility of canceling its intensive neurological therapy due to financial limitations.
Meg Longhenry had recently knew Crawford that they would have to cancel their next treatment due to the lack of funds, but he told him to enter anyway.
Frantic mother to save a clinical trial that could cure her daughter: “The treatment is sitting in a refrigerator”
“I said, don’t worry about that, they just come. There is no way I am letting Millie take care of, we have gone too far.”
On the morning of March 27, when the Crawford team was about to perform another regenerative medicine procedure with Millie, they prayed for divine intervention, he told Fox News Digital.
Click here to get the Fox News application
“A couple of hours later, we received random phone call,” he said. “He was another patient who has been following Millie’s story, and she said: ‘I feel that I should donate something for the case of Millie, and my reception said, well, that would be incredible.”
Bill longhenry is photographed holding his daughter, Millie. “She continues to grow and develop and is becoming stronger,” he said. (Bill and meg longhenry)
The donor offered to cover the total pending balance for the treatment of Millie, more than $ 47,000.
“It is simply impossible to understand that level of generosity of a stranger,” said Bill Longhenry.
“We have to follow this treatment, but it’s not Covered by insuranceThen we are doing everything possible to work. “
Click here to register in our health newsletter
Finally, the Longhenrys discovered who covered medical expenses, a previous patient from Dr. Crawford. They were able to call her and thank him for the donation.
While this anonymous gift erases a great financial obstacle, Millie’s trip is far from finishing, the family shared.
Millie is photographed with her older brother, Theo. In March, an anonymous donor named Neurosolution Center from Austin and offered to cover the pending medical debt of the Hovenghenrys. (Bill and meg longhenry)
It will require monitoring therapy every four to six months, specialized home equipment and trips for continuous attention, which insurance does not cover.
“I think finance are always really scary for us … but there is no price that I can put in your life,” said Meg Longhery. “I will continue fighting and doing what I need to do so that I can have the best life I can.”
“There is no price that can put in your life.”
The family also depends largely on their faith, believing that Jesus worked through Dr. Campbell to help save Millie’s life, according to his mother.
“We serve a God so great that he is bigger than our greatest fears: He is the best doctor and aligns us with the place where we need to be and who we need to be,” he said.
For more health articles, visit www.foxnews.com/health
“And it is very encouraging to see the growth that they told us repeatedly that we would not see.”
For more information about Millie’s trip and progress, people can visit Moamuntoinsformillie.org or @MovingMountinsformillie on Instagram.
